PTSurveyDisability and rehabilitation2023

Health information seeking in the digital age: a national survey of women with disabilities.

Susan Robinson-Whelen, Rosemary B Hughes, Jeanne L Alhusen and 3 others

PMID 35916449

WHAT IT FOUND

Women with physical disabilities were frequent online health information seekers, but most found the information only a little helpful and described searching as effortful and frustrating.

Key findings

0182% of respondents accessed health information online at least once a month in the past year.

02Bladder and bowel problems (70%) and finding a physician (57%) were the most searched topics.

03For 11 of 13 topics, the most common helpfulness rating was only a little helpful.

STILL TO COME

How it was doneWhat they foundWhat it means for PTs

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What it does not show

The sample was not representative: it was predominantly White and highly educated, with 71% having college degrees, so findings may not apply to women with disabilities who are less resourced or less digitally connected. Participants had to have internet access and were recruited through online disability networks, so women without reliable internet or with more severe access barriers were likely missing. The survey used many study-generated self-report questions and asked participants to recall internet activities over the past year, so accuracy cannot be guaranteed. The study was cross-sectional and descriptive, so it cannot show that any intervention improved information seeking or health outcomes. Funding did not allow Spanish translation, which may have limited participation by Latinas with disabilities.

Declared interests

The authors report no conflicts of interest. The article metadata lists NIH extramural research support.

The easy way to misread this

Do not conclude that online health information is adequate for women with disabilities. This survey found frequent searching but mostly low helpfulness and high frustration, and the sample was predominantly White and highly educated.

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