RNSurveyJournal of family nursing2025

Family Members' Psychosocial Support in Palliative Inpatient Care: A Cross-Sectional Study.

Anu Soikkeli-Jalonen, Kaisa Mishina, Johanna Saarinen-Nassar and 4 others

PMID 40888437

WHAT IT FOUND

Family members of palliative inpatients said psychosocial support was mostly as much as desired, but information was the weakest area.

They wanted more proactive discussion of prognosis, support providers, ward routines, and consistent staff.

Key findings

01Family members rated overall psychosocial support close to the desired level, with a median score of 2.96 on a scale where 3 means as much as desired.

02Informational support scored lowest, with a median of 2.89 and 69.6% reporting it was as much as desired.

03Specific information gaps were common: 37.9% felt underinformed about support providers, 31.6% wanted more prognosis details, and 29.8% wanted better insight into department practices.

STILL TO COME

How it was doneWhat they foundWhat it means for RNs

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What it does not show

This was a one-time self-report from family members, so it cannot show whether current support changes patient or family outcomes. The study was limited to Finnish specialist palliative care wards, so it may not fit other health systems or care settings. Family members were recruited through ward coordinators and only after patient permission, so some eligible families may not have been contacted. The wards reported that patients were deteriorating and families were too burdened to participate, which may have excluded the families most in need of support. The reported response rate was 57%, but incomplete records made the exact number of refusals and the true response rate uncertain. The sample was mostly women and uneven by relationship to the patient, so group differences, especially for men, parents, siblings, and other relatives, are only indicative. The scale treats the middle score as optimal, but some respondents may have chosen higher scores to mean a positive experience rather than more support than desired.

Declared interests

The authors declared no potential conflicts of interest. The research was funded by The Cancer Association of Pirkanmaa, state funding for university-level health research at Tampere University Hospital, the Wellbeing services county of Pirkanmaa, and the Eemil Aaltonen foundation.

The easy way to misread this

Do not read this as proof that current palliative care support works or that changes will improve outcomes. It is one-time self-reported perception from family members, mostly women, with incomplete recruitment records.

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