RNQualitativeThe American journal of hospice & palliative care2026

Exploring the Relationship Between Palliative Care Knowledge, Health Concerns, and Education Among Seriously Ill Older Adults and Their Family Caregivers Using Survey and Interview Data: A Novel Approach.

Abigail Amponsah, Kira G Sheldon, Elizabeth A Luth

PMID 41636583

WHAT IT FOUND

People who declined palliative care often understood it could help stress but still worried.

Those who did not know it could help stress were all worried and had less education. Ask about stress and side effects before explaining what palliative care can do.

Key findings

01Participants who did not know palliative care could help with stress were all worried about stress, and all had less than a bachelor's degree.

02Eighteen participants knew palliative care could help with stress, and eight of them were still worried.

03Participants who knew palliative care could help manage treatment side effects were split between being worried and not worried.

STILL TO COME

How it was doneWhat they foundWhat it means for RNs

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What it does not show

The sample was too small for statistical testing, so the patterns may be chance. Most participants were highly educated, so the results may not apply to people with less schooling. People who did not speak English were excluded, so patterns may differ for non-English speakers. Participants came from one Medicare Advantage plan, so other settings may differ. The study only included people who declined palliative care, so it cannot compare them with people who accepted it. The authors could not assess experiences with racial discrimination, trust in providers, or religious preferences.

Declared interests

The authors declared no potential conflicts of interest.

The easy way to misread this

Do not conclude that palliative care knowledge caused people to decline services, or that explaining palliative care will increase uptake. This was a small descriptive study of people who already declined, and it did not test any intervention or use statistical testing.

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