Experiences and Perceptions of People With Advanced Cancer and Their Family Caregivers of Shared Decision-Making in Palliative Cancer Care.
Jannicke Rabben, Gudrun Elin Rohde, Mariann Fossum and 1 others
PMID 39887407WHAT IT FOUND
People with advanced cancer and family caregivers wanted different levels of involvement.
Many saw shared decision-making as choosing treatment, felt uncertain about their role, and could not see how nurses contributed.
Key findings
01Most participants equated involvement with being sufficiently informed, and many deferred final treatment decisions to physicians.
02Most participants were uncertain about how they could be involved, and many saw shared decision-making mainly as making final treatment choices.
03Most participants could not identify how nurses contributed to treatment decisions, but some described nurses as liaising, providing continuity, and advocating for patients.
STILL TO COME
How it was doneWhat they foundWhat it means for RNs
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What it does not show
All participants were from Norway's majority ethnic population, so the findings may not apply to people from other cultural backgrounds. Most participants were still receiving active treatment, so the study says less about care decisions where nurses may be more involved. The researchers could not record how many potential participants declined or their characteristics, which limits transferability. The findings are participants' perceptions and may not match what actually happened in practice. The study was conducted in Norway, where most cancer treatment and care options are available and free and care pathways are standardised, so expectations may differ in other systems. The sample came from two hospitals and was small for qualitative work, so it cannot describe all people with advanced cancer.
Declared interests
The authors declared no conflicts of interest.
The easy way to misread this
Do not conclude that nurses have no role in shared decision-making. Most participants could not identify nurses' contribution to treatment decisions, but some described nurses as liaising, providing continuity, and helping with everyday care.