Experience of sleep disruption in primary Sjögren's syndrome: A focus group study.
Katie L Hackett, Vincent Deary, Katherine Ho Deane and 3 others
PMID 29657352WHAT IT FOUND
Focus group participants with primary Sjögren’s syndrome described unrefreshing sleep, night awakenings and dryness disrupting sleep.
They found CBT-I ideas acceptable when clinicians explained the rationale, though sleep restriction received a mixed response.
Key findings
01Patients described unrefreshing sleep and regular night awakenings.
02Nighttime dryness and leg discomfort were described as disrupting sleep.
03Participants considered some CBT-I advice acceptable, and said clinicians needed to explain the rationale for techniques that seemed counterintuitive.
STILL TO COME
How it was doneWhat they foundWhat it means for OTs
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What it does not show
This was a qualitative focus group study, so it describes experiences and acceptability, not whether any treatment works. Only 13 of 62 invited people attended at least one focus group, and not everyone attended all three sessions. Patient participants had been diagnosed for an average of 12 years, so newly diagnosed people may have different experiences. The topic guide questions were limited, although they started discussion. The moderator had met several participants through clinical work or previous research, and participants were from a specialist clinic and had taken part in an earlier study, so they may not represent all people with PSS.
Declared interests
The supplied text does not report a funding source or author conflict of interest declaration. It says the study was registered on the NIHR CRN portfolio of non-commercial clinical research studies.
The easy way to misread this
Do not read this as evidence that CBT-I improves sleep or daytime function in primary Sjögren’s syndrome. The study explored experiences and acceptability of intervention ideas, not treatment outcomes.