Expanding the Palliative Care Domains to Meet the Needs of a Community-Based Supportive Care Model.
Eric W Anderson, Monica S Frazer, Sandra E Schellinger
PMID 28423918WHAT IT FOUND
Patients, families and professionals described caregiving, money and legal worries, and legacy concerns as part of serious illness.
Ask about these alongside symptoms.
Key findings
01The proposed family/caregiver, financial/legal, and legacy/bereavement domains accounted for 168 (29%) of all quotes.
02Of the 111 items coded to family/caregiver, 97 had originally been coded to the social aspects of care domain.
03Six family/caregiver themes emerged: challenges, families acting together, rewards, family growth, insights, and honoring wishes.
STILL TO COME
How it was doneWhat they foundWhat it means for RNs
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What it does not show
It was a secondary analysis of interviews conducted to gain insights for a new clinical model. General questions about caregiving were asked, but there were no specific questions on legal matters, financial concerns, legacy, or bereavement. Proposals for the smaller domains are preliminary until further research can be done. The sample of patients and families came from traditional family settings. Not all questions were asked of each group. Professionals' comments about patients or care they provided were not included. The study did not measure patient or caregiver outcomes.
Declared interests
The authors declared no potential conflicts of interest. The work was funded by a grant from the Robina Foundation.
The easy way to misread this
Do not read these themes as proof that adding domains improves patient care. The study analysed interviews and did not test outcomes.