Evaluating measures to assess loneliness in autistic adults.
Kana Grace, Anna Remington, Jade Davies and 1 others
PMID 38143433WHAT IT FOUND
Autistic adults said widely used loneliness questionnaires were not fully suitable.
Items assumed non-autistic norms, missed online, pet or professional relationships, and unclear wording made absolute scores potentially misleading.
Key findings
01The three loneliness measures were positively correlated with one another, suggesting they may index the same construct.
02Autistic adults reported that adjustments were needed to make either questionnaire fully suitable for use with the autistic population.
03Participants raised three themes: items could conflate loneliness with autism, loneliness was not static, and wording or response options were unclear.
STILL TO COME
How it was doneWhat they foundWhat it means for SLPs
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What it does not show
The participants were recruited online and may not represent the whole autistic population; 90.1% were White and 69% had university qualifications. There was no comparison group in the study, so comparisons with general population loneliness scores are not part of the primary data. Participants may have self-selected because they were interested in or aware of loneliness, which could make them lonelier than the broader autistic population. Only the UCLA scale and SELSA were evaluated, so the findings may not apply to other loneliness measures. Preference for one scale was not asked directly; only 32 participants spontaneously stated a preference. Because the survey was online and required written responses, it may not capture the experiences of autistic adults who use sign language or communication devices.
Declared interests
The authors declared no potential conflicts of interest and received no financial support for the research, authorship or publication.
The easy way to misread this
Do not conclude that the UCLA and SELSA measures are fully suitable for autistic adults because their scores correlated with the direct measure. The same participants said the items assumed non-autistic norms, missed online, pet or professional relationships, and had unclear wording, so absolute scores may overestimate or underestimate loneliness.