SLPSurveyAutism : the international journal of research and practice2024

Evaluating measures to assess loneliness in autistic adults.

Kana Grace, Anna Remington, Jade Davies and 1 others

PMID 38143433

WHAT IT FOUND

Autistic adults said widely used loneliness questionnaires were not fully suitable.

Items assumed non-autistic norms, missed online, pet or professional relationships, and unclear wording made absolute scores potentially misleading.

Key findings

01The three loneliness measures were positively correlated with one another, suggesting they may index the same construct.

02Autistic adults reported that adjustments were needed to make either questionnaire fully suitable for use with the autistic population.

03Participants raised three themes: items could conflate loneliness with autism, loneliness was not static, and wording or response options were unclear.

STILL TO COME

How it was doneWhat they foundWhat it means for SLPs

Read the rest of this summary

You get three full summaries a month, free, and we do not ask for a card. Search, the TL;DRs and your library stay unlimited either way.

Already have one?

What it does not show

The participants were recruited online and may not represent the whole autistic population; 90.1% were White and 69% had university qualifications. There was no comparison group in the study, so comparisons with general population loneliness scores are not part of the primary data. Participants may have self-selected because they were interested in or aware of loneliness, which could make them lonelier than the broader autistic population. Only the UCLA scale and SELSA were evaluated, so the findings may not apply to other loneliness measures. Preference for one scale was not asked directly; only 32 participants spontaneously stated a preference. Because the survey was online and required written responses, it may not capture the experiences of autistic adults who use sign language or communication devices.

Declared interests

The authors declared no potential conflicts of interest and received no financial support for the research, authorship or publication.

The easy way to misread this

Do not conclude that the UCLA and SELSA measures are fully suitable for autistic adults because their scores correlated with the direct measure. The same participants said the items assumed non-autistic norms, missed online, pet or professional relationships, and had unclear wording, so absolute scores may overestimate or underestimate loneliness.

Read it on PubMed →