Disparities in Palliative and Hospice Care and Completion of Advance Care Planning and Directives Among Non-Hispanic Blacks: A Scoping Review of Recent Literature.
Mohsen Bazargan, Shahrzad Bazargan-Hejazi
PMID 33287561WHAT IT FOUND
Non-Hispanic Black patients in US are less likely to receive palliative or hospice care and to complete advance directives, and more likely to die in hospital.
Low awareness, mistrust, discrimination, family preferences, and care settings shape these gaps.
Key findings
01Review evidence points to consistent disparities: non-Hispanic Black patients are less likely to receive palliative or hospice care and complete advance directives, and more likely to die in hospital.
02Barriers include confusion between palliative and hospice care, low awareness, mistrust, perceived discrimination, family-centered preferences, and religious beliefs, but some reviews found no consistent race difference in trust.
03Some community, faith-based, family-centered, and game-based advance care planning interventions improved engagement or documentation, including one claiming 41% completed a new advance directive, but most published interventional studies showed minor or mild impacts.
STILL TO COME
How it was doneWhat they foundWhat it means for RNs
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What it does not show
It is a scoping review, so it maps and summarizes studies rather than testing one intervention or estimating how large any effect is. Many included studies are qualitative, single-site, or small, so the findings may not apply to all non-Hispanic Black patients or families. The evidence is not uniform: some studies found no race differences in trust, palliative care consults, or advance care planning knowledge, and some disparities appeared to narrow over time. National surveys often did not collect enough detail about minority adults, cultural values, religion, or provider attitudes. Most interventional studies showed minor or mild impacts, and newer approaches such as video-game or telehealth methods need larger testing.
Declared interests
The authors declared no potential conflicts of interest. The work was supported by the Centers for Medicare & Medicaid Services and the National Institute on Minority Health and Health Disparities, and it was commissioned by the California Black Health Network with funding from the California Health Care Foundation.
The easy way to misread this
Do not conclude that non-Hispanic Black patients simply prefer aggressive care or distrust hospice. The review also points to delayed referrals, hospital site, insurance, provider communication, and discrimination, and some studies found no consistent race difference in trust or palliative care consults.