Disability and the household context: Findings for the United States from the public Use Microdata Sample of the American Community Survey.
Christiane von Reichert
PMID 36188986WHAT IT FOUND
Nearly 43 million U.S. people have disability, and 42 million more live with someone who does.
Disability often reaches beyond the patient to households, especially rural and multigenerational homes.
Key findings
01Nearly 43 million U.S. people have disability, and 42 million people without disability live in households with disability.
02Household-level disability affects twice as many people as individual disability rates suggest.
03Family households with disability are less likely to follow the core family pattern: reference person, spouse/partner, and sons/daughters account for just over 80% of members, compared with roughly 92% in households without disability.
STILL TO COME
How it was doneWhat they foundWhat it means for OTs
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What it does not show
The ACS uses yes-or-no questions about walking, cognition, vision, hearing, self-care, and independent living, so it cannot describe severity, cause, or the specific functional problems a therapist would assess. The data are a 2015-2019 cross-sectional snapshot, not follow-up, so they cannot show how household composition changes over time or what causes it. The analysis does not measure who provides care, how much care is given, or whether household support helps or harms community participation. The author notes that ACS disability estimates are conservative compared with health and disability surveys, so the counts may be lower than true disability prevalence. Group quarters are described separately and are not treated as household members, so the household-with-disability count does not include people living in institutions. Urban-rural categories are approximated from county classifications, not direct measures of urbanity or rurality. The study is population-level and descriptive, so it cannot be used to infer effects for an individual patient or to test any therapy.
Declared interests
Funded by National Institute on Disability, Independent Living, and Rehabilitation Research grants #90RT5023 and 90RTCP0002. The author declares no commercial or financial relationships that could be construed as a potential conflict of interest.
The easy way to misread this
Do not read the household patterns as evidence that family or multigenerational living improves disability outcomes. The study reports who lives with whom at one point in time and does not test any intervention or outcome.