OTQualitativeAustralian occupational therapy journal2022

Different in so many ways: Exploring consumer, health service staff, and academic partnerships in a research advisory group through rapid ethnography.

Ruth Cox, Matthew Molineux, Melissa Kendall and 2 others

PMID 35871761

WHAT IT FOUND

Twelve experienced consumer and staff partners described a four-month research advisory group as unusually equal, with their advice acted on rather than ignored.

They credited clear timelines, skilled facilitation, and check-in agendas for this. It reports their experiences, not proof the model works.

Key findings

01Participants valued treating consumers as peers and praised the group for being genuinely equal rather than dominated by professionals.

02Advisory group input changed the wider study: members persuaded the team to let people indicate more than one involvement role, and to rate capabilities separately for consumers and staff.

03Skilled, warm and organised facilitation by the occupational therapy lead was described as critical to the group's success.

STILL TO COME

How it was doneWhat they foundWhat it means for OTs

Read the rest of this summary

You get three full summaries a month, free, and we do not ask for a card. Search, the TL;DRs and your library stay unlimited either way.

Already have one?

What it does not show

Everyone in the group already had substantial consumer involvement experience, so this tells you little about engaging people new to research or from communities that have been left out. All members had at least a bachelor's degree and could access videoconferencing, which narrows whose experience is represented. No consumers were paid, which the authors note may itself create a power imbalance and limit who can take part. The research team was deeply committed to consumer partnership before the study began, so their own views may have shaped what was recorded and reported. Benefits to the wider study and to future practice were anticipated by participants rather than measured. Results come from one advisory group in one Australian health service, so they are context-specific and may not transfer to your setting.

Declared interests

The authors declared no known conflicts of interest and no financial support for the study. Two grant applications that included a budget to pay consumers were unsuccessful, so no consumer was remunerated.

The easy way to misread this

Do not read the positive themes as evidence that this advisory group model improves research quality. The study reports what twelve experienced partners said they enjoyed and valued, with no comparison group and no measured outcomes, so it describes an experience rather than proving a method works.

Read it on PubMed →