Differences in continence rates in individuals with spina bifida based on ethnicity.

This is an observational registry study, so it cannot show that Hispanic/Latino ethnicity causes lower continence. The study did not measure possible reasons for the disparity, such as access to care, language, culture, family priorities, or adherence to treatment. Registry data recorded management techniques in use, not prescribed interventions, so it cannot account for whether recommended treatments were started or followed. It did not link specific bladder or bowel techniques, such as how often someone catheterizes, to continence outcomes. The analysis was limited to participants age 5 years and older at the last visit, so it does not speak to younger children. Continence definitions changed during data collection, although the authors created a common dichotomized definition.

The authors declared no conflicts of interest. The registry is described as CDC-supported, and the report says the findings and conclusions are the authors' and do not necessarily represent the official position of the CDC.

Do not conclude that Hispanic/Latino ethnicity causes worse continence or that ethnicity alone should guide treatment. The study is observational, did not measure access, culture, language, adherence, or family priorities, and after adjustment the urinary continence difference was not significant.