Development of Measures for d/Deaf and Hard of Hearing Stigma: Introduction to the Special Supplement on Stigma Measurement Tools.
Melissa A Stockton, Howard W Francis, Jessica S West and 24 others
PMID 39294877WHAT IT FOUND
Stigma measures were developed for deaf and hard of hearing people, parents, care partners, healthcare providers, and the public, but test results are published elsewhere, so they are not yet ready for clinical use.
Key findings
01The paper says it developed stigma survey measures for deaf and hard of hearing people, parents, care partners, healthcare providers, and the public in the United States and Ghana, but the test results are not in this article.
02Pre-testing and revision produced final stigma measures for deaf and hard of hearing people, parents of deaf and hard of hearing children, care partners, healthcare providers, and the general population.
03The authors note that stigma can affect communication, language development, and access to care for deaf and hard of hearing people.
STILL TO COME
How it was doneWhat they foundWhat it means for SLPs
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What it does not show
No test results for the measures are reported in this article. The authors say the work may reflect a United States bias. The measures were developed mainly with adults, not young children. The authors say some Deaf community members were not fully included. The authors say the cognitive interview samples were small. The authors say the measures were tested in only the United States and Ghana.
Declared interests
The paper says it is a product of the Lancet Commission on Hearing Loss and that all members of the stigma subgroup are co-authors.
The easy way to misread this
Do not read this article as evidence that the stigma measures work in practice. The authors say the test results are not reported here and are presented in other papers.