Development of a Diabetes Rural Stakeholder Research Team and Patient-Centered Research Agenda.
Vanessa D Jewell, Amy A Abbott, Emily Knezevich and 8 others
PMID 41127954WHAT IT FOUND
A rural Type 1 diabetes research team retained all members for the project and 2 years after, using a four-strategy engagement plan.
The output was a patient-centered research agenda. No patient outcomes were measured.
Key findings
01All stakeholders were retained for the full project duration and 2 years after completion.
02The team developed a patient-centered rural Type 1 diabetes research agenda centering on family lifestyle changes after diagnosis and lack of access to care.
03The research agenda supports using geographic isolation as a strength by reinforcing resourcefulness and technology use in rural communities.
STILL TO COME
How it was doneWhat they foundWhat it means for OTs
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What it does not show
This is a process description of a stakeholder engagement plan, not a clinical study. No patient outcomes, intervention effects, or treatment comparisons are reported. The team struggled to recruit racially and ethnically diverse stakeholders despite multiple strategies. Rural Nebraska and Iowa are over 80% non-Hispanic white, so the findings may not generalize to other populations. The focus group results, which might contain the most clinically relevant findings, are reported in a separate paper and are not available here. The engagement plan is specific to this team, these two states, and this community. It is not a tested intervention with a control group.
Declared interests
Funded by the Patient-Centered Outcomes Research Institute (grant 10443), Creighton University Center for Undergraduate Research and Scholarship, and the Creighton University School of Pharmacy and Health Professions Student Research Fellowship. The authors declared no conflicts of interest.
The easy way to misread this
Do not read the 100% retention rate as evidence that this engagement model improves diabetes outcomes. The retention refers to the stakeholder team staying on the project, not to patient health. No patient outcomes were measured in this paper.
Summarised by AI from the full paper, without a clinician reviewing it. Check it against the source before it changes what you do. Read it on PubMed →