RNSurveyNursing open2023

Development and validation of a questionnaire to evaluate the knowledge, attitude, behaviour and care preference of family members of Chinese older adults related to palliative care.

Xiaofen Wu, Xiran Li, Ting Su and 7 others

PMID 36114724

WHAT IT FOUND

A 42-item questionnaire for Chinese family members of older adults was validated for measuring knowledge, attitudes, behaviour and palliative-care preferences.

It can help nurses identify what families understand and want before end-of-life care discussions.

Key findings

01The final 42-item questionnaire measured knowledge, attitude, behaviour, and care preference.

02The questionnaire showed high internal consistency, with overall Cronbach's alpha 0.93.

03It was validated in 1,010 properly completed online responses from family members in nine Chinese provincial areas.

STILL TO COME

How it was doneWhat they foundWhat it means for RNs

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What it does not show

Participants were recruited through convenience online sampling, so the sample may not represent all Chinese families. The mean age was 27.5 ± 9.40 years, so older family members were underrepresented. All participants and experts were from China, so use in other cultures is uncertain. The online survey made it difficult to calculate a response rate. The questionnaire was developed and validated only for family members of older adults in China.

Declared interests

No conflicts of interest were declared. The study was funded by the Guangdong Degree and Postgraduate Education Reform Program, granted by the Department of Education of Guangdong Province.

The easy way to misread this

Do not conclude that using this questionnaire improves palliative care decisions or outcomes. This paper reports validation of a survey tool in a young, convenience-based Chinese sample.

Read it on PubMed →