SLPQualitativeAutism : the international journal of research and practice2021

Cross-cultural perspectives on the meaning of family quality of life: Comparing Korean immigrant families and Canadian families of children with autism spectrum disorder.

Vanessa C Fong, Emily Gardiner, Grace Iarocci

PMID 33482693

WHAT IT FOUND

Korean immigrant parents of children with autism described family quality of life as shared family goals, faith, and feeling accepted by society.

Canadian parents described family interactions, support, emotional well-being, individual characteristics, and comparisons to other families.

Key findings

01Korean immigrant parents described family quality of life through family cohesiveness, value orientation, and acceptance from society.

02Canadian parents described family interactions, support, emotional well-being, individual characteristics, and comparisons to other families.

03Family cohesiveness was important for 11 Korean immigrant families, and value orientation was central for nine interviews.

STILL TO COME

How it was doneWhat they foundWhat it means for SLPs

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What it does not show

Most respondents were mothers, and the authors note this may limit generalizability to all caregivers. Korean families were recruited through a Korean immigrant support organization, so they may not represent Korean immigrant families without that support. Canadian families were grouped by self-identified Canadian nationality, but country of origin was not collected, so cultural differences within that group are unknown. Children in the Korean immigrant sample were much older than children in the Canadian sample, so age may have shaped parents' views. All interviews were in English, so non-English-speaking parents were not included. The samples were small and purposive, so the themes cannot be treated as generalizable to all families.

Declared interests

The authors declared no potential conflicts of interest. Funding came from a BC SUPPORT Unit grant, the Social Sciences and Humanities Research Council of Canada, the Canadian Institute of Health Research, and a Michael Smith Foundation for Health Research Scholar Award.

The easy way to misread this

Do not read these themes as evidence that a culturally adapted service improves family quality of life. This study asked parents to describe their views. It did not test an intervention. The small, purposive samples also cannot be treated as representative of all Korean immigrant or Canadian families.

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