Community participation in youth with craniofacial microsomia.
Vera C Kaelin, Erin R Wallace, Martha M Werler and 2 others
PMID 32478589WHAT IT FOUND
Youth with craniofacial microsomia participated less frequently and were less involved in community activities than peers without the condition who did not receive services.
Caregivers of youth with craniofacial microsomia desired change in more activities. No significant differences were found when compared to peers who did receive services.
Key findings
01Youth with CFM participated less frequently in community activities than non-affected peers not receiving services.
02Youth with CFM were less involved in community activities than non-affected peers not receiving services.
03Caregivers of youth with CFM desired change in community participation for a greater number of activities compared to non-affected peers not receiving services.
STILL TO COME
How it was doneWhat they foundWhat it means for PTsWhat it means for OTsWhat it means for SLPs
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What it does not show
The study relied exclusively on caregiver report, and youth self-report of participation may differ. Non-parametric testing for level of involvement did not allow for covariate adjustment, which could introduce bias. Information on the reason or duration of services for the comparison group was missing, limiting the ability to analyze the impact of specific service types. The sample was predominantly White, non-Hispanic, and from families earning above the median US income, which may limit generalizability. Attrition analysis showed non-enrolled participants were more likely to be non-white or Hispanic, potentially introducing selection bias.
The easy way to misread this
Do not conclude that youth with CFM have worse participation outcomes than all peers. The significant differences were only found when compared to youth without CFM who did not receive services. When compared to youth without CFM who did receive services, there were no significant differences in participation frequency, involvement, or desire for change.