Comfort Needs of Cancer Family Caregivers in Outpatient Palliative Care.
Karla T Washington, Jacquelyn J Benson, Daphne E Chakurian and 4 others
PMID 33605647WHAT IT FOUND
Cancer family caregivers in outpatient palliative care said they needed understandable information, confidence in caregiving tasks, emotional and practical support, help navigating care, money for travel and lodging, and sleep.
Key findings
01Caregivers needed to make sense of information about diagnosis, treatment, symptoms, equipment and insurance, and to feel able to perform caregiving tasks.
02Caregivers needed informal support from friends, family and other caregivers, and formal support from healthcare teams, especially help navigating care.
03Caregivers needed practical resources for caregiving, including financial help, and time for physical self-care such as sleep.
STILL TO COME
How it was doneWhat they foundWhat it means for RNs
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What it does not show
This was a secondary analysis, so the researchers could not adjust interview questions during data collection as in a primary qualitative study. The analysis focused on comfort needs and did not examine all parts of Comfort Theory. The interviews came from a single outpatient palliative care clinic in the Midwestern United States. The analyzed sample was almost entirely female and Caucasian, so findings may not represent racial, ethnic or male caregivers. Only 39 of the 63 available transcribed interviews were analyzed; 18 of 83 trial participants declined interviews and 2 recordings failed. Caregivers were interviewed only after exiting the trial, and those who exited early could choose whether to be interviewed, which may affect whose voices are included.
Declared interests
The original trial was funded by the National Cancer Institute under grant R21CA191165. The authors declared no conflicts of interest.
The easy way to misread this
Do not read these themes as evidence that a specific caregiver intervention improves comfort or outcomes. This was a qualitative secondary analysis of 39 interviews, almost entirely from female and Caucasian caregivers, so it describes needs in one group and does not test treatment effects.