Co-Designing Peer Support for Women Labelled With Intellectual Disabilities Who Have Experienced Sexual Violence.
Alexis Buettgen, Tammy Bernasky, Kelly MacDougall and 7 others
PMID 41077670WHAT IT FOUND
Women labelled with intellectual disabilities who experienced sexual violence said peer support should be built with them, not for them.
They asked for caring, listening, companionship, fair pay, emotional support, safe matching, accessible communication and practical help.
Key findings
01Peer support research and programming must be rooted in 'Nothing About Us Without Us', meaning women with lived expertise must be included in design.
02Participants described peer support as a process of healing, companionship, caring, sharing, listening and connection.
03Peer support implementation requires financial compensation, ongoing emotional support, effective matching, accessible communication, disability accommodations and logistical support.
STILL TO COME
How it was doneWhat they foundWhat it means for OTs
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What it does not show
The symposium used purposive and snowball sampling from team networks, so the participants were not a representative sample of women with intellectual disabilities, service providers or researchers. All women with lived expertise identified as heterosexual and as women, so the co-design did not capture experiences of other groups. The online format excluded people who did not want to participate virtually or lacked resources to do so. Some women with lived expertise said the virtual setting made it hard to connect with peers and that three half-day sessions were not enough time. The paper reports co-design themes and terms of reference, not a trial of peer support. The sample included 7 women with lived expertise, 18 service providers and 9 researchers, and the paper notes organisational cultures that overrepresent nondisabled providers and researchers as a barrier.
Declared interests
The authors declared no conflicts of interest. The Social Sciences and Humanities Research Council of Canada funded the work.
The easy way to misread this
Do not read this as evidence that peer support works for women with intellectual disabilities who have experienced sexual violence. The paper reports co-design themes and terms of reference from a symposium.
Summarised by AI from the full paper, without a clinician reviewing it. Check it against the source before it changes what you do. Read it on PubMed →