Co-creating Digital Stories With UK-Based Stroke Survivors With the Aim of Synthesizing Collective Lessons From Individual Experiences of Interacting With Healthcare Professionals.

Only six workshop participants were involved, and only five completed digital stories, so these lessons may not represent other stroke survivors. One participant withdrew before the final stage, so the final stories came from five participants. The paper did not report testing the stories with healthcare professionals or measuring outcomes; it says the next step is to engage healthcare professionals and evaluate impact. Participants came from a previous qualitative study and excluded people unable to provide consent or with severe cognitive or communicative impairment; no one used aphasia support, so survivors with communication difficulties were not represented. The sample was 33 to 63 years old, all White British, and none had a disability before stroke, so older survivors, other ethnicities, and people with pre-existing disability were not represented. All contact was remote because of COVID-19, which may have affected who could participate and how the process worked.

The study was funded as part of a full-time PhD research studentship at Glasgow Caledonian University. The authors declared no commercial or financial relationships that could be construed as a potential conflict of interest.

Do not read the six lessons as evidence that digital stories improve clinician behavior or patient outcomes. The study did not test the stories with healthcare professionals and measured no clinical outcome; it only co-created stories and themes with five stroke survivors who completed stories.