Caring for the Informal Caregivers: Systematic Review of Unmet Needs in Palliative Care.
Matteo Usai, Marco Sguanci, Anna De Benedictis and 2 others
PMID 41236197WHAT IT FOUND
Family caregivers in palliative care settings commonly reported unmet needs for timely information, practical help, a dedicated contact, emotional support and respite.
Existing assessment tools do not fully capture financial and legal burdens.
Key findings
01Fourteen of 17 studies reported that family caregivers needed help with information, symptom management, practical tasks, and legal or financial issues.
02Twelve studies reported that family caregivers needed emotional and psychological support and respite.
03Existing caregiver assessment tools can identify practical and emotional support needs, but leave gaps in mobility, home management, financial and legal needs.
STILL TO COME
How it was doneWhat they foundWhat it means for RNs
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What it does not show
The included studies were mostly cross-sectional and self-reported, so they describe needs at a point in time rather than how needs change or what interventions help. Findings came mainly from Western countries and from cancer, end-of-life and Parkinson's disease populations, so they may not apply to all patient groups or settings. Several studies mixed care settings, so it is hard to tell which needs are specific to home, hospice or hospital care. The review only used published studies in English, Italian or Spanish from 1990 onward, so relevant unpublished or other-language work may be missing.
Declared interests
The authors declare no conflicts of interest.
The easy way to misread this
Do not read this as evidence that caregiver needs assessment tools or palliative support programs improve outcomes. The review synthesises descriptive studies of unmet needs and instruments; it does not test whether meeting these needs reduces caregiver distress or improves patient care.