OTSLPCohortDevelopmental medicine and child neurology2019

Camp-based psychosocial intervention dosage and changes in independence in young people with spina bifida.

Colleen F Bechtel Driscoll, Caitlin B Murray, Christina E Holbein and 3 others

PMID 30980543

WHAT IT FOUND

More camp summers were associated with parent-rated increases in spina bifida self-management independence and mastery.

Camper-rated increases and social skills did not remain associated after accounting for age, IQ and severity. Without a control group, camp exposure and maturation cannot be separated.

Key findings

01More years of camp participation were associated with higher parent-reported camper independence in spina bifida self-management tasks and greater parent-reported mastery of these tasks.

02Camper-reported independence was associated with more years of camp participation before adjustment, but not after age, IQ and lesion level were included.

03More years of camp participation were not associated with changes in parent-reported social skills.

STILL TO COME

How it was doneWhat they foundWhat it means for OTsWhat it means for SLPs

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What it does not show

There was no control group or random allocation, so the study cannot show that the camp intervention caused the reported changes. The intervention components were delivered together, so the study cannot identify whether goal setting, counselor discussions, workshops, peer contact, counselor attention, or the overall camp experience produced the association. Participants were campers who chose to attend repeatedly, not a population-based sample, so results may not apply to all young people with spina bifida. Campers with lower parent-reported baseline responsibility attended more often, which may have biased the sample toward those with the most room to improve. The analysis used pre-camp scores only, so it cannot show whether changes happened during camp, after camp, or across summers. Camper-reported independence gains did not remain associated with dosage after adjustment, and parent and camper reports differed. Maturation may partly explain parent-reported independence gains: campers with a gap between camp years had larger gains than those attending consecutively. Effect sizes were small except for parent-reported independence, and the authors say clinical meaningfulness was not established.

Declared interests

The supplied text does not include a conflict-of-interest declaration. The publication types list NIH extramural and non-U.S. government research support.

The easy way to misread this

Do not conclude that repeated camp-based psychosocial intervention causes greater independence in young people with spina bifida. The study had no control group, the intervention components were bundled, and campers who attended less consecutively showed larger parent-reported gains, so maturation or the general camp experience may explain the association.

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