Building Research Initiatives by Developing Group Effort (BRIDGE): Patient-Partners in Aphasia Research.
Alejandro Brice, Jacqueline Hinckley
PMID 36288736WHAT IT FOUND
People with aphasia and their families worked alongside researchers and clinicians to form 11 research teams.
Participants rated the conference highly, but the language used was often too fast and supports were insufficient. This is a service report, not evidence that a treatment works.
Key findings
01The conference formed 11 research teams, each including at least one researcher, one clinician, and one person with aphasia or family member.
02Participants rated the conference satisfaction between 3.63 and 4.60 on a 5-point scale, but the language used was rated only 3.74 as aphasia-friendly.
03Follow-up calls showed communication issues decreased, with comments on communication dropping from 32 to 17 between the first and second calls.
STILL TO COME
How it was doneWhat they foundWhat it means for SLPs
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What it does not show
This is a descriptive report of a conference, not a controlled study. There is no comparison group. Outcomes are based on self-reported satisfaction surveys and transcript analysis, not objective measures of research quality or patient health. The report does not provide evidence that the formed research teams successfully completed their studies or that the process improves patient care.
Declared interests
The authors report no conflict of interest. The project was funded through the Eugene Washington Engagement Award.
The easy way to misread this
Do not interpret the high satisfaction ratings as evidence that this conference model improves patient outcomes or research quality. This is a descriptive report of a service event, not a controlled trial testing an intervention.