PTOTSLPSurveyMolecular autism2025

Autistic and transgender/gender diverse people's experiences of health and healthcare.

Kate Green, Elizabeth Weir, Lily Wright and 2 others

PMID 39833979

WHAT IT FOUND

Autistic adults, especially those who are transgender or gender diverse, report far worse healthcare experiences and much higher rates of physical and mental health conditions than non-autistic adults.

They struggle with communication, sensory overload, and accessing care.

Key findings

01Both cisgender autistic and transgender/gender diverse autistic adults reported significantly poorer healthcare experiences than cisgender non-autistic adults across 50 out of 51 survey items.

02Transgender/gender diverse autistic adults had the highest odds of diagnosed mental health conditions (adjusted odds ratio 10.89) and self-harm (adjusted odds ratio 5.84) compared to cisgender non-autistic adults.

03Transgender/gender diverse autistic adults were significantly less likely than cisgender autistic adults to be able to get to healthcare appointments or pharmacies, and to know who to contact for healthcare concerns.

STILL TO COME

How it was doneWhat they foundWhat it means for PTsWhat it means for OTsWhat it means for SLPs

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What it does not show

The sample was recruited via convenience sampling, likely biasing it towards individuals with more health problems or negative healthcare experiences. The TGD autistic group was small (n=174), which may have led to underpowered analyses for comparisons between the two autistic groups. There was no TGD non-autistic comparison group, so it is unclear if some difficulties are specific to the intersection of autism and gender diversity or common to TGD individuals generally. Data were self-reported and subjective, relying on patient perceptions rather than objective clinical records. The survey excluded individuals with suspected or self-diagnosed autism, limiting generalizability to those not formally diagnosed. The sample was predominantly white, female-assigned at birth, and highly educated, which may not represent the broader autistic and TGD populations.

Declared interests

The authors declared funding from Rosetrees Trust, Cambridge and Peterborough NHS Foundation Trust, Autism Centre of Excellence at Cambridge, NIHR Cambridge Biomedical Research Centre, NIHR Applied Research Collaboration East of England, Simons Foundation Autism Research Initiative, Wellcome Trust, Innovative Medicines Initiative 2 Joint Undertaking, Templeton World Charitable Fund, and Medical Research Council. No specific conflicts of interest were detailed beyond these funding sources.

The easy way to misread this

Do not assume that all autistic patients have the same healthcare needs. The study highlights that transgender/gender diverse autistic adults face unique and compounded barriers, particularly in accessing care and communicating with providers, which are distinct from those faced by cisgender autistic adults.

Read it on PubMed →