SLPOtherJournal of autism and developmental disorders2022

Autism Through the Ages: A Mixed Methods Approach to Understanding How Age and Age of Diagnosis Affect Quality of Life.

Gray Atherton, Emma Edisbury, Andrea Piovesan and 1 others

PMID 34482523

WHAT IT FOUND

Autistic adults reported lower quality of life than non-autistic adults.

Later diagnosis was linked with poorer quality of life and more autistic traits. Interviews described years of masking and stigma, then diagnosis as helpful but stressful.

Key findings

01Participants with autism reported lower combined quality of life than typically developed participants.

02Among autistic adults, later age of diagnosis was associated with higher autistic traits and lower quality of life.

03Adults diagnosed after age 18 described barriers to a diagnosis, negatives of a non-diagnosis, benefits of a diagnosis, and two sides to a diagnosis.

STILL TO COME

How it was doneWhat they foundWhat it means for SLPs

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What it does not show

Autism diagnosis was self-reported and not confirmed by formal testing. The survey measured people at one time point, so it cannot show that diagnosis timing changes quality of life. Seventeen typically developed participants with clinical-range autistic traits were removed, so the comparison group was screened for autism-like traits. The qualitative part included eight adults, all diagnosed after age 18 and mostly recently diagnosed, so themes may not apply to all autistic adults. All interview participants were white, and the interview sample came from an online survey, not from clinical records. Quality of life was measured by combining five self-report scores, so the result depends on that composite rather than one direct measure.

The easy way to misread this

Do not conclude that later diagnosis causes poorer quality of life. The study measured self-report associations without following people over time, and the interviews covered adults diagnosed in adulthood.

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