Appropriateness, Acceptability, and Feasibility of a Neurodiversity-Based Self-determination Program for Autistic Adults.
T A Meridian McDonald, Salima Lalani, Ivy Chen and 5 others
PMID 35618972WHAT IT FOUND
31 autistic adults found a multi-component self-determination program acceptable and feasible, and most reported goal progress, but no control group means the program was not shown to cause change.
Key findings
01Participants rated the immersion week as highly acceptable (mean 4.58) and most (65%) were very satisfied with coaching (mean 4.42).
02Participants accomplished an average of 0.96 goals per week, but the study had no control group, so the multi-component program was not shown to cause goal attainment.
03Participants set goals across many domains, including recreation/leisure, employment/vocation, social skills/emotion regulation, relationships, health and well-being, daily skills/self-care, finances, and transportation.
STILL TO COME
How it was doneWhat they foundWhat it means for OTsWhat it means for SLPs
Read the rest of this summary
You get three full summaries a month, free, and we do not ask for a card. Search, the TL;DRs and your library stay unlimited either way.
What it does not show
The study had no control group, so goal attainment and self-reported improvements cannot be attributed to the program. Only 31 participants were analyzed, and the program was modified across four cohorts, so the findings reflect a small pilot rather than a stable tested intervention. The sample was predominantly male, White, and non-Hispanic, so the results may not apply to other autistic adults. Participants volunteered for a self-determination program, so they may have been more motivated than autistic adults who did not participate. Of 46 enrolled participants, 31 remained after screening and attrition, with schedule conflicts, parent involvement, social anxiety, and incomplete procedures contributing. The paper does not state whether participants applied the psychoeducation and skills from the immersion week to their goal attainment. Parental over-involvement threatened delivery, and the program deliberately excluded parents but could not always prevent it.
Declared interests
The authors reported no conflicts of interest.
The easy way to misread this
Do not read the average goal attainment or perceived improvements as evidence that the program works. The study had no control group, included several components at once, and the authors state they cannot decipher whether goal attainment was due to the program.