Applying a User-Centered Design Framework to Develop a Remote Research Assessment Protocol for a Randomized Clinical Trial for Toddlers with Early Autism Characteristics.
Daina M Tagavi, Yael G Dai, Natalie I Berger and 9 others
PMID 38985370WHAT IT FOUND
The redesigned remote assessment was rated as usable by 88% of staff assessors.
Families showed high retention, with 89.2% completing the 4-month follow-up and 83.8% completing the 9-month follow-up. Staff maintained high fidelity to the protocol.
Key findings
01Staff assessors rated the usability of the assessment tool as acceptable, with 88% scoring above the threshold for acceptable usability.
02Retention was high among families, with 89.2% of eligible families presenting for the 4-month follow-up and 83.8% completing the 9-month follow-up.
03Staff assessors demonstrated high fidelity to the assessment protocol, with mean fidelity ratings of 96.3%.
STILL TO COME
How it was doneWhat they foundWhat it means for SLPs
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What it does not show
The assessment is a research tool and has not been validated for clinical diagnosis of autism. The data are preliminary and from an ongoing study, so the tool's sensitivity to change over time has not yet been fully powered or confirmed. The protocol requires delivering standardized toys and technology to families, which may be resource-intensive and less feasible for clinics without similar funding.
Declared interests
All authors declare that they have no conflicts of interest.
The easy way to misread this
Do not use this assessment for clinical diagnosis. The paper explicitly states that this is a research tool, not a clinical one, and it has not been validated against gold-standard diagnostic measures like the ADOS-2.
Summarised by AI from the full paper, without a clinician reviewing it. Check it against the source before it changes what you do. Read it on PubMed →