Analyzing the Communication Interchange of Individuals With Disabilities Utilizing Facebook, Discussion Forums, and Chat Rooms: Qualitative Content Analysis of Online Disabilities Support Groups.
Nichole E Stetten, Kelsea LeBeau, Maria A Aguirre and 4 others
PMID 31573937WHAT IT FOUND
The Facebook disability group shared awareness and policy concerns.
The anonymous forums and chat rooms were used for emotional support and discussed health and daily life. Chat rooms were the most candid about mental health.
Key findings
01The Facebook support group analysis revealed 4 themes: mutual and shared experiences, societal concerns, awareness, and health care policy.
02Discussion forum and chat room analyses each revealed 3 themes: emotional outlet and support, health, and quality of life.
03Forum and chat room members mentioned mental health almost daily, while Facebook group members seldom posted about it.
STILL TO COME
How it was doneWhat they foundWhat it means for OTs
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What it does not show
The study analyzed only 1 Facebook group, so its Facebook findings may not apply to other disability support groups. It included only 2 discussion forums and 2 chat rooms, and the authors described the work as a pilot study. The data were public posts interpreted by researchers, and no participants were recruited or consented. The groups were general disability groups, not specific disability groups, so findings may not fit particular conditions. Posted information was not fact-checked, so advice shared online may be inaccurate. Facebook discussion was not necessarily encouraged between members, and this may indicate passive participation.
Declared interests
The authors declared no conflicts of interest.
The easy way to misread this
Do not conclude that online support groups are effective treatments for disability-related distress or participation barriers. The study only described themes in a small number of public posts and did not measure patient outcomes or compare treatment effects.