An mHealth App-Based Self-management Intervention for Family Members of Pediatric Transplant Recipients (myFAMI): Framework Design and Development Study.
Riddhiman Adib, Dipranjan Das, Sheikh Iqbal Ahamed and 1 others
PMID 34780344WHAT IT FOUND
myFAMI asks families of pediatric transplant recipients daily symptom and coping questions.
If answers trigger alerts, nurses are prompted to call within 2 hours. This is an app design report, not proof that it improves outcomes.
Key findings
01The app sends participants a notification at 8:00 AM each day to remind them to complete a survey.
02A yes or don’t know symptom answer, or a difficulty score of 3 or greater, triggers an alert for a nurse call.
03When an alert is triggered, the nurse calls the participant within 2 hours to discuss the potential problem.
STILL TO COME
How it was doneWhat they foundWhat it means for RNs
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What it does not show
This is a design and development report, not a completed clinical trial, so it cannot tell whether myFAMI changes patient or family outcomes. Family members were involved only during beta testing, not during ideation or early development. Only 2 transplant families provided beta-test feedback. Real-world deployment produced bugs not caught during alpha testing, including empty notifications. Requiring log-in for each survey submission reduced responses, so that check was removed and replaced with a confirmation prompt.
Declared interests
The authors declare no conflicts of interest.
The easy way to misread this
Do not conclude that myFAMI improves pediatric transplant outcomes or reduces readmission. This paper describes app design, nurse testing, and feedback from 2 families, not a completed trial with patient results.