OTSLPQualitativeAutism research : official journal of the International Society for Autism Research2018

An international qualitative study of functioning in autism spectrum disorder using the World Health Organization international classification of functioning, disability and health framework.

Soheil Mahdi, Marisa Viljoen, Tamara Yee and 7 others

PMID 29226604

WHAT IT FOUND

People with ASD, families and professionals described functioning across communication, daily routines, work, school, sensory issues and environment.

These categories may guide OT and SLP assessment of whole life participation, not just diagnosis.

Key findings

01The study linked participant statements to 110 second-level ICF categories across activities, body functions, environmental factors and body structures.

02Important areas included communication, daily routines, self-care, domestic life, education, employment, leisure, family support and attitudes.

03Participants also described ASD-related strengths, including honesty, focused attention and out-of-the-box thinking.

STILL TO COME

How it was doneWhat they foundWhat it means for OTsWhat it means for SLPs

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What it does not show

Of 102 eligible participants contacted, 90 completed the discussions or interviews. Children, adolescents and intellectually disabled autistic individuals were underrepresented, and some stakeholder groups were missing in certain countries. The Western Pacific region was not included, and only North America was represented from the Americas. Translation into English made some cultural expressions difficult or impossible to capture exactly. The counts of categories show consistency across groups, not how common or important each category is. The study describes themes and classification concepts; it does not test whether an intervention improves functioning.

Declared interests

Several authors declared no conflict of interest related to this work. Petrus J de Vries reports multiple Novartis-related roles, including advisory and scientific board work. Sven Bölte reports no direct conflict but has acted as an author, consultant or lecturer for companies and receives royalties.

The easy way to misread this

Do not read the identified ICF categories or strengths as proof that any treatment works. This study described what participants said and how concepts linked to ICF categories. It did not test interventions.

Read it on PubMed →