Agents of empathy: How medical interpreters bridge sociocultural gaps in genomic sequencing disclosures with Spanish-speaking families.
Amanda M Gutierrez, Emily E Statham, Jill O Robinson and 7 others
PMID 30581014WHAT IT FOUND
Medical interpreters added supportive language during genomic disclosures: they clarified terms, encouraged parents, checked understanding, used affectionate terms, and softened commands.
The study described these adaptations, not whether they improved understanding.
Key findings
01In 37 analyzed disclosure sessions, interpreters used five empathic linguistic tools: contextualization, encouragement, checking comprehension, endearment, and softening.
02Interpreters used these tools 151 times across 37 sessions, averaging four per session, with contextualization and encouragement most frequent.
03Interpreters adapted clinicians' statements by adding clarifying details, asking whether parents understood, offering reassurance, and softening commands.
STILL TO COME
How it was doneWhat they foundWhat it means for SLPs
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What it does not show
The findings were based on coders' observations and were not checked with clinicians, interpreters, or parents. The study did not measure whether parents understood the disclosure or were satisfied with interpretation, so the effect of the language adaptations is unknown. It included only parents of pediatric cancer patients at one large academic center, so it may not apply to other settings or patient groups. Interpreters' demographic information was not collected, and parents' country of origin was not known, so dialect and cultural background could not be analyzed. The results are qualitative and subjective, and may not generalize.
Declared interests
The study was supported by the National Institutes of Health. Baylor College of Medicine and Miraca Holdings have a joint venture, Baylor Genetics Laboratories, which performs exome sequencing; Dr. Plon serves on the scientific advisory board of the laboratory. All other co-authors declared no conflict of interest.
The easy way to misread this
Do not conclude that interpreters should change the clinical content of disclosures or that these tools improve patient understanding. The study described observed language adaptations and did not measure parents' comprehension, satisfaction, or outcomes.