Advance Care Planning for African American Caregivers of Relatives With Dementias: Cluster Randomized Controlled Trial.
Gloria J Bonner, Sally Freels, Carol Ferrans and 8 others
PMID 32308012WHAT IT FOUND
Written end-of-life care plans did not differ between groups after education for African American caregivers, although knowledge and self-efficacy about CPR, ventilation, and tube feeding improved.
Key findings
01Knowledge of CPR, mechanical ventilation, tube feeding, and self-efficacy increased more in the ACT-Plan group than in the attention control group at weeks 4 and 20.
02Intentions to write an end-of-life care plan and actual written care plans did not differ significantly between groups at either time point.
03Dementia knowledge increased more in the ACT-Plan group than in the control group, but the difference was significant only at week 20.
STILL TO COME
How it was doneWhat they foundWhat it means for RNs
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What it does not show
Only four churches were used, with two sites per condition, so site-level variation was limited and standard errors may be underestimated. Participants were recruited from African American megachurches in metropolitan Chicago, so the sample may not represent caregivers in other communities or cultures. Within randomized sites, caregivers were assigned by convenience rather than individually randomized. Intention and written care plan outcomes were not measured before the intervention; the study assumed all participants started with no. The study tested eight outcomes at two time points, and although a conservative Bonferroni correction was applied, multiple comparisons remain a concern. Many caregivers did not know the care recipient's dementia diagnosis, which may affect interpretation of dementia knowledge outcomes. Of 358 enrolled, 264 completed the week 20 posttest, so long-term findings rest on fewer participants.
The easy way to misread this
Do not conclude that this education increases written end-of-life care plans. The trial found better knowledge and self-efficacy, but intentions and written care plans did not differ from the control group.