Adapting an early autism caregiver coaching intervention for telehealth delivery in low-resource settings: A South African study of the 'what' and the 'why'.
Marisa Viljoen, Noleen Seris, Nokuthula Shabalala and 3 others
PMID 39655488WHAT IT FOUND
A South African autism caregiver coaching programme was adapted to WhatsApp voice or video calls for low-resource settings.
The team made 10 planned changes, including simple images instead of video and home-recorded clips, because data costs, phones and pandemic rules constrained delivery.
Key findings
01The adapted intervention delivered 12, 1-h caregiver coaching sessions over WhatsApp voice or video calls.
02Adaptation planning took 8 months and identified 10 adaptations, all made during the preparation phase.
03The reasons for adaptation included the digital divide, WhatsApp privacy policy, COVID-19 restrictions, school leadership, ethics-board support, caregiver and practitioner characteristics, and the team’s relationship with the intervention co-developer.
STILL TO COME
How it was doneWhat they foundWhat it means for SLPs
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What it does not show
The study analysed meeting notes and planning summaries retrospectively, so some adaptation details or reasons may be missing. It describes adaptations only; it did not test whether telehealth sessions changed caregiver or child behaviour. Fidelity consistency of the adapted content was not evaluated at this stage. The online training and supervision were designed for ECD practitioners who already had in-person training, so they may not fit practitioners without that background. Adaptations were made under COVID-19 restrictions and time pressure, which may limit transfer to other settings. Community stakeholders and autistic individuals were not directly involved in designing the telehealth sessions.
Declared interests
The authors declared no potential conflicts of interest. Funding came from the National Institute of Mental Health and the Fogarty International Center.
The easy way to misread this
Do not read this as evidence that telehealth caregiver coaching improves autism outcomes. The paper documents 10 planned adaptations and the reasons for them, but it did not measure caregiver or child behaviour change.