RNSurveyScandinavian journal of caring sciences2019

Accessibility, utilisation and acceptability of a county-based home care service for sick children in Sweden.

Charlotte Castor, Inger Kristensson Hallström, Kajsa Landgren and 1 others

PMID 30865330

WHAT IT FOUND

Parents to 23 children rated home care visits as highly acceptable, and 209 of 212 questionnaires preferred home care to hospital.

Utilisation was limited and varied across units, so access is not guaranteed.

Key findings

01Parents to 23 children reported high overall experience, satisfaction and feeling of safety after 212 home care visits, and 209 of 212 questionnaires preferred home care to hospital care.

02Most referrals concerned specified care tasks (n = 333, 93.7%), and only a minority concerned palliative care (n = 22, 6.3%).

03There were significant differences between home care units in referral indications for palliative care, intravenous antibiotics and acceptance rate.

STILL TO COME

How it was doneWhat they foundWhat it means for RNs

Read the rest of this summary

You get three full summaries a month, free, and we do not ask for a card. Search, the TL;DRs and your library stay unlimited either way.

Already have one?

What it does not show

Acceptability was measured in parents to only 23 children, and two families supplied 50% of the questionnaires, so the ratings may not represent all families. Non-Swedish-speaking families were excluded, although they are an increasing part of the Swedish population. The study describes one Swedish county and a service that had recently begun caring for children, so referral patterns and acceptance rates may not apply elsewhere. The study did not measure clinical outcomes or compare home care with hospital care, so high family ratings cannot be read as evidence of safety or effectiveness. The palliative-care group and the children who died were small, so it cannot tell you how well the service meets end-of-life needs. Some parents may not have been approached because of gatekeeping by home care staff or short care periods.

Declared interests

The work was funded by the Swedish Childhood Cancer Foundation, Lions Research Foundation, Jonas Foundation, Region Skane and the Mjölkdroppen Foundation. The supplied text names these funders but does not give a competing-interest statement.

The easy way to misread this

High parent acceptability does not show that home care is clinically safer or more effective than hospital care. The study reports family ratings and service use, not clinical outcomes.

Read it on PubMed →