A Web-Based Knowledge Translation Resource for Families and Service Providers (The "F-Words" in Childhood Disability Knowledge Hub): Developmental and Pilot Evaluation Study.
Andrea Cross, Peter Rosenbaum, Danijela Grahovac and 4 others
PMID 30578233WHAT IT FOUND
Most survey respondents found a childhood-disability website useful: 61 of 66 rated it user-friendly, and 58 of 63 said it increased their understanding.
It does not show patient outcomes changed.
Key findings
01The hub drew over 6,800 unique visitors during a four-month evaluation period.
02Among 66 respondents who rated the hub's usefulness, 61 found it user-friendly and 62 found the content relevant for service providers.
03Among 63 respondents who completed the use section, 58 said the hub increased their understanding and 49 said it influenced their thinking.
STILL TO COME
How it was doneWhat they foundWhat it means for PTs
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What it does not show
The survey feedback came from a small sample of the people who visited the hub during the evaluation period. Most respondents were already familiar with the F-words and liked the ideas, so their positive ratings may reflect selection bias. The study measured self-reported usability and intended use, not observed changes in family or service-provider behaviour or child outcomes. The survey was open for only 1 month, and the hub was still being developed. The respondents were self-selected visitors, not a random sample of all people who saw the hub.
The easy way to misread this
Do not read the high survey ratings as proof that the hub improves child function or changes clinical practice. The pilot measured self-reported usability and intended use from a small, mostly already familiar sample.