PTOTSLPQualitativeJournal of autism and developmental disorders2023

A Qualitative Exploration into the Sensory Experiences of Autistic Mothers.

Moyna Catherine Talcer, Orla Duffy, Katy Pedlow

PMID 34251566

WHAT IT FOUND

Seven autistic mothers described how pregnancy and childcare intensified sensory overwhelm, making touch and sound painful.

Late diagnosis prevented them from understanding these reactions. They relied on downtime and online peer support, often feeling misunderstood by healthcare professionals.

Key findings

01All participants reported heightened sensory experiences during pregnancy that did not always return to baseline after birth.

02Auditory and tactile over-reactivity were the most frequently reported difficulties, causing stress and impacting caregiving.

03All participants received their autism diagnosis only after becoming mothers, which they felt delayed their ability to adopt effective coping strategies.

STILL TO COME

How it was doneWhat they foundWhat it means for PTsWhat it means for OTsWhat it means for SLPs

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What it does not show

The sample was very small (7 participants), all white, middle-aged, and living in the UK, so findings may not apply to other groups. Participants were recruited via social media and a specific database, which may bias the sample towards those who are already connected to autism services or communities. The researcher was an 'insider' (autistic herself), which may have influenced the depth of sharing but also introduces potential bias in interpretation. All participants were diagnosed as adults, so the study does not capture the experiences of those diagnosed in childhood.

Declared interests

The authors declared no conflicts of interest.

The easy way to misread this

Do not treat these themes as evidence that specific interventions work. This study describes what autistic mothers experienced and found helpful, but it did not test any treatment or measure outcomes. The findings are subjective and based on a tiny, non-representative sample.

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