A multi-constituent qualitative examination of facilitators and barriers to caregiver coaching for autistic children in publicly funded early intervention.
Jordan Albright, Jacqueline A Shinall, Liza Tomczuk and 5 others
PMID 39171756WHAT IT FOUND
Caregivers and providers agreed that coaching succeeds when expectations align and relationships are strong.
Providers saw caregiver stress as a barrier, but caregivers did not, instead citing the burden of coordinating services. Telehealth discomfort also hindered engagement during the pandemic.
Key findings
01Providers identified caregiver stress as a barrier to coaching, but caregivers did not view stress as a barrier, instead citing service coordination burdens.
02Misaligned expectations about who delivers therapy were a major barrier across all groups, while clear understanding facilitated engagement.
03Telehealth delivery during the pandemic was a barrier because caregivers found it difficult to engage children and were uncomfortable on camera.
STILL TO COME
How it was doneWhat they foundWhat it means for SLPs
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What it does not show
Only six agency leaders participated, so their views may not represent all leaders. Data collection occurred during the COVID-19 pandemic, which may have skewed perspectives toward telehealth challenges. The CFIR framework was applied post-hoc, so some relevant constructs may not have been captured by the interview questions.
Declared interests
None declared in the provided text.
The easy way to misread this
Do not assume caregiver stress is the primary barrier to coaching participation. Caregivers in this study did not report stress as a barrier; they reported the burden of coordinating services. Providers should address logistical and navigational support rather than solely focusing on stress management.