SurveyChild: care, health and development2026

Youth Participation, Agency and Well-Being in Hospital-Linked Contexts: Evidence From the KIDS Programme.

Lucía García Expósito

PMID 41980885

WHAT IT FOUND

Adolescents in hospital-linked KIDS advisory groups said they were listened to and respected, and those who felt real influence and support reported more emotional and academic benefit.

Experiences differed: some were happy but felt their work went unnoticed outside the group.

Key findings

01Participants rated the programme highly overall; being respected, learning a lot and feeling safe scored highest, while the lowest-rated item was whether the programme and their school worked together to provide access to activities and services.

02Feeling able to influence decisions about the programme and having strong relational support were the conditions most closely linked to higher emotional and academic well-being; external recognition was also linked, while accessibility and future-oriented expectations were not.

03Participants did not share one experience: distinct groups emerged, with the group scoring high on every dimension reporting the highest well-being and the group lowest on personal development reporting the lowest.

STILL TO COME

How it was doneWhat they found

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What it does not show

The design is descriptive and correlational with no comparison group and no follow-up, so it cannot show that taking part caused anything, only that the two things went together. The authors say this themselves, and that the small convenience sample limits statistical generalisability. Well-being was measured only by the adolescents' own ratings of what the programme had done for them, collected in the same questionnaire as the participation items, not by an independent or clinical measure. It is a programme-related perception, not a measure of adolescent mental health. The factor analysis was run with a small sample relative to the number of items, which the authors call a preliminary structural exploration rather than a validation of the instrument. The four profiles rest on small numbers: one of them contained three adolescents, and the authors say the differences between profiles, including any differences by gender or age, should be interpreted cautiously. Only 50 adolescents took part and they came through their local chapters on a voluntary basis, so chapters that were keener to take part are better represented than others, and several chapters contributed only one or two people. No information on race or ethnicity was collected, because recruitment crossed countries with different ways of classifying people.

Declared interests

The funding statement reads "The author has nothing to report", and the author declares no conflicts of interest.

The easy way to misread this

Do not read this as evidence that a youth advisory programme improves adolescents' mental health or school performance. The well-being measures were the adolescents' own ratings of what the programme had done for them, collected in the same questionnaire as the participation measures, with no comparison group and no independent or clinical assessment.

Summarised by AI from the full paper, without a clinician reviewing it. Check it against the source before it changes what you do. Read it on PubMed →


The study

Participants
50 adolescents from 8 KIDS chapters
Certainty of evidence
Low

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    Cite

    Lucía García Expósito Youth Participation, Agency and Well-Being in Hospital-Linked Contexts: Evidence From the KIDS Programme. Child: care, health and development. 2026.

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    Youth Participation, Agency and Well-Being in Hospital-Linked Contexts: Evidence From the KIDS Programme. — Applied Evidence