What Can We Learn From a Human-Rights Based Approach to Disability for Public and Patient Involvement in Research?
Jacqui Browne, Emma R Dorris
PMID 36189077WHAT IT FOUND
This paper argues that research involving disabled people should follow human rights frameworks like the UN Convention on the Rights of Persons with Disabilities.
It provides guidance for researchers on making studies inclusive and accessible, rather than reporting clinical results or treatment outcomes.
What this paper is
This is a theoretical discussion and policy analysis applying the UN Convention on the Rights of Persons with Disabilities (CRPD) to public and patient involvement (PPI) in research. It outlines principles for inclusive research design, such as using the social model of disability and ensuring accessibility, but reports no clinical trials, patient outcomes, or therapist interventions. There are no findings here to change clinical practice.
The easy way to misread this
Do not interpret the recommendations for inclusive research design as evidence for a specific therapeutic intervention or clinical protocol. The paper discusses how to involve disabled people in the creation of research, not how to treat them.