Walking Function and Capacity in Middle-Aged and Older (59-66y) Adults With Spina Bifida Myelomeningocele: A 4-Year Follow-up Study.
Sandra Linnea Klund-Hansen, Kerstin Lundberg Larsen, Ingeborg Beate Lidal and 2 others
PMID 40463775WHAT IT FOUND
Over 4 years, 5 of 10 adults with spina bifida myelomeningocele had 6-minute walk distance fall by more than 30 m, and 6 of 10 reported severe fatigue.
Short-distance walking speed mostly did not change. Longer-distance walking tests may reveal decline.
Key findings
01Five participants decreased their 6-minute walk distance by more than 30 m, and the reported median decreased by 56 m over 4 years.
02Six participants had severe fatigue symptoms, and these were the participants with the largest decrease in 6-minute walk distance.
03Most participants did not change short-distance walking speed, but six reported worse walking function over 4 years.
STILL TO COME
How it was doneWhat they foundWhat it means for PTs
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What it does not show
Only 10 people were analysed, and the authors presented no statistical tests, so changes cannot be treated as reliable group effects. The sample came from an older cohort without hydrocephalus and excluded people who had died, could not attend, had treatment for other conditions, stopped walking, or had uncertain diagnosis, so it likely represents a higher-functioning group. The 30-m 6-minute walk threshold was taken from adults with lung conditions, not from people with spina bifida, so the flagged declines may not be directly comparable. One participant reported improvement and attributed it to gait and balance training, but this is a single case and cannot show that the training worked. Fatigue and pain were self-reported and may overlap; the paper says they are hard to distinguish.
Declared interests
The investigators reported no financial or nonfinancial disclosures related to the project.
The easy way to misread this
Do not read the reported decline as a reliable average change for all adults with spina bifida. The paper was a very small descriptive follow-up, had no statistical tests, and excluded people who had died, stopped walking, or could not attend, so it describes a selected group.