Using Non-Standard Research Methods to Explore the Perspectives of People With Intellectual Disabilities on Sensitive Topics: A Discussion of the Research Paradigm, Data Collection Methods and Data Analysis.
Irene Tuffrey-Wijne, Andrea Bruun, Rebecca Anderson-Kittow
PMID 42055537WHAT IT FOUND
A methods paper, not a study report.
It sets out how the team ran focus groups with people with intellectual disabilities about end-of-life planning, and why they used games instead of interview questions. The findings went into a separate paper.
What this paper is
This is a methodological discussion paper, not a study report. The authors describe how they designed and ran four focus groups with 19 adults with intellectual disabilities about end-of-life care planning, replacing interview questions with games, picture stories and a washing line, and how they then analysed the material with a simplified form of framework analysis. The focus group findings themselves were written up and published separately, and this paper reports no health or service outcomes. There is nothing here to change your practice on.
Declared interests
Funded by the National Institute for Health and Care Research (Research for Social Care and Research for Patient Benefit programmes, NIHR202963). The authors declare no conflicts of interest.
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