OtherJournal of applied research in intellectual disabilities : JARID2025

Using Individual Service Funds (ISFs) to Improve Access to Self-Directed Support for Adults With Intellectual Disabilities: A Participatory Realist Review.

Elizabeth Croot, Alice Dunning, Andrew Booth and 1 others

PMID 41362069

WHAT IT FOUND

Individual Service Funds work best when providers know the person well, share budget information clearly, and allow quick changes to support plans.

Adults with intellectual disabilities reported greater choice and community involvement when these conditions were met.

Key findings

01Positive outcomes depend on providers having the time, skills, and knowledge to involve individuals and their advocates in support planning.

02Accessible and transparent information about how the budget is spent helps individuals and their advocates feel in control and build trust with providers.

03Flexibility to change support plans without waiting for formal local authority review prevents needs from escalating and reduces anxiety.

STILL TO COME

How it was doneWhat they found

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What it does not show

Many included studies were derived from organisations keen to promote ISFs, which may have resulted in a positive reporting bias. The review focused on UK-based literature, though searches were extended to other care systems if few items were found, limiting generalisability to other national contexts. The complexity and variability of ISF implementations make it difficult to evaluate specific components independently.

Declared interests

The authors declare no conflicts of interest. The research was funded by the National Institute for Health Research.

The easy way to misread this

Do not interpret this as evidence that ISFs are universally effective or superior to other funding models. The review explains the conditions under which ISFs work well, but the authors note that many providers currently lack the staffing and resources to meet these conditions, meaning the theory describes an ideal rather than a guaranteed outcome.

Summarised by AI from the full paper, without a clinician reviewing it. Check it against the source before it changes what you do. Read it on PubMed →


The study

Participants
13 adults with intellectual disabilities, 4 support workers, 1 family carer, 2 adult social care commissioners, 2 social workers, and 2 service providers in the advisory network; 8 stakeholders in individual interviews; 15 adults with intellectual disabilities and 6 family carers in focus groups
Certainty of evidence
Low

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    Cite

    Elizabeth Croot, Alice Dunning, Andrew Booth, et al. Using Individual Service Funds (ISFs) to Improve Access to Self-Directed Support for Adults With Intellectual Disabilities: A Participatory Realist Review. Journal of applied research in intellectual disabilities : JARID. 2025.

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