Uncertainty and self-efficacy in parents of a child with congenital cataract-New implications for clinical practice.
Jenny Gyllén, Gunilla Magnusson, Anna Forsberg
PMID 31367402WHAT IT FOUND
Parents of children with congenital cataract reported uncertainty swinging between shock and acceptance.
Seeing their child make progress, clear guidance, and confirmation from clinicians were described as helping them keep patching; setbacks and vague instructions increased doubt.
Key findings
01Parents described acceptance as accepting the facts, observing the child's progress, and enjoying the situation when treatment worked.
02The child's performance accomplishment was the single most prominent mediator of acceptance.
03Lack of structure, information, guidance and support from the ophthalmology team caused greater uncertainty and disappointment.
STILL TO COME
How it was doneWhat they foundWhat it means for RNs
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What it does not show
The study reports parents' experiences; it does not test whether case managers, education or confirmation improve patching or vision. Most participants were from Sweden or another European country, so transferability to other settings is limited. The authors assume parents who agreed to take part may have been coping fairly well. The interviews were re-analysed retrospectively with a strong theoretical pre-understanding, and recall bias was acknowledged.
The easy way to misread this
Do not read the clinical implications as evidence that a case manager or more confirmation improves patching or visual outcomes. The study reports parents' experiences and suggestions, not tested interventions.