Transition from parents to caregivers of a child with type 1 Diabetes Mellitus: a scoping review.
Fábio Alexandre Melo do Rego Sousa, Maria de Lurdes Monteiro Serrabulho Andrade, Célia Maria Gonçalves Simão de Oliveira
PMID 36722648WHAT IT FOUND
Parents of children with type 1 diabetes described grief, fear of hypoglycemia, exhausting vigilance and difficulty learning home care.
Health professionals, family and other parents were reported as key supports.
Key findings
01Across 31 included studies, parents described the transition after a child's type 1 diabetes diagnosis as involving grief, fear, constant vigilance and exhaustion.
02Parents often found hospital information hard to understand and felt unprepared for home management after discharge.
03Health team availability, other parents and support groups were reported as important supports.
STILL TO COME
How it was doneWhat they foundWhat it means for RNs
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What it does not show
Only 31 studies were included, and three potentially relevant articles could not be accessed in full text. Most included studies were from North America and Europe, so experiences may differ in other health systems and cultures. The review maps experiences and does not test whether any support strategy improves outcomes. Included studies were mostly qualitative, so themes describe what parents reported, not measured clinical effects.
The easy way to misread this
Do not read this as evidence that nurse-delivered support improves diabetes outcomes or family well-being. It is a scoping review of parents' experiences, and the authors state that its nature does not allow implications for practice.