RNSurveyJournal of clinical nursing2021

'The Woman Gives': Exploring gender and relationship factors in HIV advance care planning among African American caregivers.

Allysha C Maragh-Bass, Danetta Hendricks Sloan, Elizabeth V Aimone and 1 others

PMID 33829592

WHAT IT FOUND

Only 41% of African American caregivers of people living with HIV had discussed advance care planning.

Sibling caregivers, less mutual support, and women familiar with advance care planning terms were linked to fewer discussions.

Key findings

01Forty-one percent of caregivers had previously discussed advance care planning with the person they cared for, with similar rates for men and women.

02Siblings, and friends among men, were less likely to report advance care planning discussions than spouses or partners.

03Among women caregivers, familiarity with advance care planning topics was associated with a lower likelihood of reporting advance care planning discussions.

STILL TO COME

How it was doneWhat they foundWhat it means for RNs

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What it does not show

The outcome was only whether a caregiver had ever discussed advance care planning, not how well, when, or what was said. The data were cross-sectional, so the associations cannot show that any factor caused more or fewer discussions. Sex and gender were treated as binary and interchangeable, and the sample was mostly cisgender and heterosexual, so findings may not apply to other gender identities or sexual orientations. The qualitative findings came from 11 caregivers, so they describe lived experiences rather than a pattern proven across all caregivers. Adjusted analyses were restricted to African American caregivers, which may have reduced statistical power and led to some marginal associations. The sample was mainly middle-aged African American caregivers and care recipients who were insured, engaged in medical care, and often had injection drug use history, limiting generalisability.

The easy way to misread this

Do not read this as evidence that giving caregivers more advance care planning information will increase discussions. The study is cross-sectional, and among women caregivers, familiarity with advance care planning topics was associated with lower likelihood of reported discussions.

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