RNSurveyThe American journal of hospice & palliative care2024

The Stresses of Surrogate Decision-Making: Contributing Factors and Clinicians' Role in Mitigation.

Adrienne D Mishkin, Nicole C Allen, Stephanie G Cheung and 3 others

PMID 37704184

WHAT IT FOUND

Surrogates making medical decisions for adults reported high stress, especially when deciding about ending life-sustaining treatment.

Feeling the team was honest, respectful, and communicative, and knowing the patient's wishes, were reported as stress reducers.

Key findings

01In adjusted analysis, decisions about deferring life-sustaining treatment and other decisions were associated with lower total stress than decisions about ending life-sustaining treatment.

02Surrogates rated feeling their participation helped, knowing the patient's wishes, having discussed end-of-life preferences, documented wishes, and experiencing the team as communicative, respectful, honest, and validating as mitigators of the decision experience.

03Bivariate analysis found total stress was associated with decision type, respondent religion, the surrogate having their own health problems at the time, and the surrogate having religious or spiritual beliefs.

STILL TO COME

How it was doneWhat they foundWhat it means for RNs

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What it does not show

The survey was exploratory and recruited through social media snowball sampling, so it may not represent all surrogate decision-makers. Most respondents were white, female, and had healthcare work experience, which makes the findings hard to apply to more diverse families. No respondent who selected Spanish completed the survey, so the results say little about Spanish-speaking surrogates. The survey instrument was not externally validated or psychometrically tested. Because many comparisons were made without correction, some reported associations could be false positives. The branched survey meant different numbers of respondents answered different items, and not all respondents completed the entire survey. The study reports associations from self-reported past experiences; it cannot show that any clinician behavior caused lower surrogate stress.

Declared interests

The supplied text describes the study as unfunded and does not report a funding source or conflicts-of-interest declaration. Data collection used REDCap hosted at New York Psychiatric Institute.

The easy way to misread this

Do not read these findings as proof that being honest, respectful, or communicative reduces surrogate stress. This was an unvalidated survey of 108 mostly white, female surrogates recruited through social media, and it reports associations rather than tested effects.

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