PTOTCohortJournal of rehabilitation medicine2022

The spasticity-related quality of life 6-dimensions instrument in upper-limb spasticity: Part I Development and responsiveness.

Lynne Turner-Stokes, Klemens Fheodoroff, Jorge Jacinto and 7 others

PMID 34726763

WHAT IT FOUND

The SQoL-6D questionnaire tracked upper-limb spasticity quality of life over 8 weeks.

Total scores improved more when patients or clinicians judged routine care helpful, so therapists can use it to track patient-reported change.

Key findings

01The SQoL-6D Total score improved by 11.9 points on a 0 to 100 scale between enrolment and follow-up.

02Mean total-score change was 17.5 points for investigator-rated great benefit, 10.1 for some benefit, and -0.8 for no benefit.

03Patients who achieved their GASeous goals improved by 13.0 points, compared with 7.9 for those who did not, but only mobility/balance reached significance (p = 0.022).

STILL TO COME

How it was doneWhat they foundWhat it means for PTsWhat it means for OTs

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What it does not show

The study did not collect full details of the spasticity treatments, so it cannot show that any particular intervention caused the score changes. It was a single-country UK cohort, so findings may not apply to other health systems or patient populations. Only 90 patients completed both visits, and the no-benefit group contained 5 patients, which is too small to define a reliable responder threshold or minimally important difference. Most between-group differences at individual item level did not reach statistical significance, except mobility/balance. Enrolment required understanding of English and cognitive ability to answer the SQoL-6D, so the results do not speak to patients who cannot use the questionnaire. The study assessed a questionnaire in real clinical care, not the effectiveness of any treatment.

The easy way to misread this

Do not read the 11.9-point improvement as proof that a specific spasticity treatment worked. The study did not collect full treatment details, and it was designed to test whether the SQoL-6D could detect change, not whether any intervention caused improvement.

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