The National Spina Bifida Patient Registry: Past, present, and future.

WHAT IT FOUND

A spina bifida registry overview describes data collection and projects.

It gives no study result a therapist can use to change care.

What this paper is

This paper describes the National Spina Bifida Patient Registry, including how it was created, what data it collects, and related quality improvement projects. It is not a completed clinical study with methods and results that show whether an intervention works. There is no finding here that a therapist can use to change patient care.

Read it on PubMed →