'The hospital and everyday life are two worlds': Patients' and healthcare professionals' experiences and perspectives on collaboration in the kidney transplantation process.
Charlotte Nielsen, Hanne Agerskov, Claus Bistrup and 1 others
PMID 31660177WHAT IT FOUND
Kidney transplant patients saw clinicians as experts and wanted clear guidance, but hospital routines left them unprepared for daily self-care.
Clinicians valued collaboration yet found it hard to share decision-making without feeling they had lost expert control.
Key findings
01Patients and healthcare professionals both saw healthcare professionals as experts, which gave healthcare professionals authority over treatment decisions.
02Patients felt hospital routines and biomedical assessments left them unprepared for decisions and self-care at home.
03Healthcare professionals supported patient self-management but found involving patients challenging because it felt like handing over power.
STILL TO COME
How it was doneWhat they foundWhat it means for RNs
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What it does not show
Only 18 patients and 8 healthcare professionals from a single centre were studied, so it may not apply to other settings. Patients who were too tired or distressed declined, so the experiences of the most unwell may be missing. The study reports experiences and perspectives, not measured treatment effects.
Declared interests
The authors declared no conflicts of interest.
The easy way to misread this
Do not read this as evidence that a collaborative consultation improves transplant outcomes. It reports experiences and perspectives from a single centre, not tested effects.