The health and well-being of children with medical complexity and their parents' when admitted to inpatient care units: A scoping review.
Lyndsay Mackay, Tammie Dewan, Lauren Asaad and 4 others
PMID 39881559WHAT IT FOUND
Parents of medically complex children described hospital stays as exhausting, frightening, and sometimes driving thoughts of suicide.
Children wanted routines, play, and staff who made them feel comfortable. The review mostly maps experiences, so it does not prove treatments.
Key findings
01Parents of children with medical complexity reported stress, anxiety, distress, worry, and sometimes thoughts of suicide.
02Parents reported inability to eat or sleep properly, no private calm space, and waking at night to provide care.
03Children reported being tired, thirsty, cold, and disrupted by noise, and preferred parent presence.
STILL TO COME
How it was doneWhat they foundWhat it means for RNs
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What it does not show
The review did not appraise study quality, so included studies may contain bias that was not considered. Most included evidence was qualitative, so it describes experiences rather than measuring treatment effects. The search was limited to English articles and did not include grey literature, so relevant work may be missing. The included populations had many different diagnoses, so the findings should be generalized with caution. Few studies were conducted from children's own perspectives, so children's experiences may be underrepresented. The Borschuk intervention report included multiple components at once, so the effect of any single component cannot be separated.
The easy way to misread this
Do not conclude that psychotherapy alone reduced parent distress. The Borschuk program also included structured multidisciplinary psychosocial rounds and support or training for nurses, respiratory therapists, and nurse practitioners on top of standard care, so the effect of any single component cannot be separated.