The GoodHope Exercise and Rehabilitation (GEAR) Program for People With Ehlers-Danlos Syndromes and Generalized Hypermobility Spectrum Disorders.
Nimish Mittal, Daniel Santa Mina, Stephanie Buryk-Iggers, Laura Lopez-Hernandez, Laura Hussey, Alyssa Franzese, Joel Katz, Camille Laflamme, Laura McGillis, Lianne McLean, Maxim Rachinsky, Dmitry Rozenberg, Maxwell Slepian, Aliza Weinrib, Hance Clarke
PMID 36188836WHAT IT FOUND
This paper describes the structure and components of a new exercise and rehabilitation program for people with Ehlers-Danlos Syndromes.
It does not report any patient outcomes or results, so there is no evidence here that the program works.
What this paper is
This paper describes the GoodHope Exercise and Rehabilitation (GEAR) program for people with Ehlers-Danlos Syndromes and Generalized Hypermobility Spectrum Disorders. It details the eligibility criteria, the structure of the intervention (including exercise prescriptions, self-management education, and community resource engagement), and the data collection methods planned for future research. However, it reports no patient outcomes, trial results, or effectiveness data. There are no findings here to change your clinical practice on.
The easy way to misread this
Do not read the detailed exercise prescriptions and program structure as evidence that this specific intervention improves symptoms or function. The paper states explicitly that GEAR is a program that supports current and future studies, and it contains no results from patients who have completed it.